Here a Heart, There a Heart, Everywhere Hearts !

February brings romance and CHD awareness!

Congenital Heart Defects awareness is the week leading up to Valentines Day, February 7 – 14.  It occurs annually with the sole purpose of educating the public. CHD is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide. Nearly 1 of every 100 babies are born with a CHD. There is estimated nearly 2,000,000 CHD survivors in the United States.

And this may surprise you – twice as many children die from congenital heart defects each year than from all forms of childhood cancers combined. Despite the fact that CHD affects approximately 1.8 millions families in the U.S.,  a relatively small amount of funding is currently available for parent/patient educational services, research, and support.

Did it surprise you? Well it did me…until it happened in my family. Isn’t that the way it is? There isn’t just one defect and to be honest I can only tell you with any knowledge about the one that affected us. It’s sad to admit that but it’s the truth.

My grandson was born with HLHS – hypo-plastic left heart syndrome. Families who have children with CHDs are thrust into a world of medical terminology, invasive surgery and days in a hospital where they do not know what to expect next.

Become aware. Respond. Support. Open your heart and love….it’s the month of both!

Advertisements

Ayden Christopher

This sweet baby is my grandson. Why, am I introducing you to him? Well, that’s because I am so thankful for him.  When my daughter was 8 months pregnant with him we discovered he had a heart defect. Special arrangements had to be made because not every hospital can deal with heart defects. Ayden was born August 14, 2010 with Hypo-plastic Left Heart Syndrome. This picture is his birthday. He had to be whisked off immediately after birth. This is the prep he had to go thru.

Ayden lived 12 days due to complications. There are surgeries to correct this and many children live.  He didn’t make it to the first one. Our time with him was precious-howbeit painful. We celebrated his 1 week birthday, we have a pic of  him wearing a college ring (his uncle’s). We savored every small thing!

God is Sovereign and sometimes it hurts. When you lose a baby the grief is different but still enormous. It’s every thing Ayden didn’t get to do, we didn’t get to do with him, all our hopes and dreams we grieved. I’m crying as I’m writing BUT I still smile when I look at sweet face. I cannot wait to see him again! I’m thankful I will, I’m thankful for him! Though his life was short he is loved tremendously!